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Both of Their Children Have Morquio Syndrome - The Story of Aviad and Yona
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“Every bone in the body stops growing at a certain point.” Aviad and Yona know this reality more intimately than most. Both of their children have Morquio syndrome, a rare genetic disorder that affects growth and development. Their story is one of resilience, hope, and choosing to find meaning even in the most difficult circumstances. Some journeys break people. Others reveal strengths they never knew they had. Watch and be inspired ❤️ #judaism #faith #emunah #emunahfaith #jewishfaith #jewishinspiration #inspiration #inspirational #jewish #hidabroot #morquiosyndrome
Categories:Torah
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Auto-generated transcript. Not time-synced to the video.
I think that my purpose in this world is
to strengthen people. And as if even
before I was born, I asked the creator
of the world to give me this illness so
that I could strengthen as many people
as possible and it would be easier for
me to do so.
>> Well, Emuna has a rare genetic syndrome
called Morquio.
>> Morquio syndrome is very very very rare.
There are in total only eight other
Jewish people
>> Eight including us.
>> Yes, eight including us.
In the country who have this Morquio.
So, uh
>> One in 400,000.
>> One in 400,000 births.
So, it's something very very uh rare and
that's also why at first they didn't
catch it. But Emuna was always we always
say that we are rare. We are
>> Rare people.
>> Rare.