RCCS - Breakthrough to Hope in Action #whataday EP. 31 | YINGLISH

Today we are going to witness the biggest breakthrough in Claus. 7:46 a.m. Rising for RCS. Finally, to the main headquarters for RCCS and I'm meeting with the one and only Zisha. Okay, >> it is 207. So first of all you have to understand the office. >> So even even if I wake up 5 in the morning I'm 3 hours behind. >> Wow. >> So no but we did a very good structure over there too. Mrs. Swiss is the the supervisor and I'm the director of the medical services but she's the day-to-day supervisor monitoring case loads intake >> intake m >> every new case that comes in >> Yeah. put into the system make and they get a nice email of all the services even somebody they don't know why they're reaching out is messed up the need so so the intake makes sure that everything is a bunch of phone calls I think there's >> I didn't want to say that I could >> Hello you. Okay. Wow. >> And he comes up and we check his labs and his recent imaging. >> He's okay. From time to time he outlets in Spain. He had a cat scan just to make sure exercise. >> Oh, that's a good pain to have. Real stuff. >> Wow. There was a little, you know, language barrier, but RCA stepped in. We helped them find the right doctors and stood with them every step of the way from diagnosis, everything in between from wig to to financial assistance. There is three patient departments. The medical department, care management department, okay, and the financial department. The financial department is financial help for patients. >> Okay. >> And they dry departments oversee. >> Uhhuh. >> The services are in place. There's quality service for the patients. >> If you open that door, it's still not complete. So when a patient medical coordinator, someone We don't want anything. No one has to know. It's all about privacy. >> Not an entry. >> Look at look what's going on here. >> Not an entry. Zoom meetings with doctors meet one-on-one with the medical coordinator. >> The location almost different kind of setups. I get a full picture of the financial department going on. If you notice here, >> yeah, >> I got a full picture um what's going on in the medical department. >> The women's health one, breast cancer is possibly the most common cancer in women. >> Wow. >> Worldwide. And it still, you know, it still causes a lot of mortality even though the advances in treatment has been have been huge, but it's still, you know, a big issue. Right now, I'm dealing with a case, a 41 year old woman, you know, in the brink of death because of a um lymphoma in the brain. She has three kids, a husband, she's 41, otherwise healthy. You guys know patients in >> in Lithuania, right? So, we had a call with the Lithuanian team um we're making a referral to uh for a patient to a very special personalized vaccine for cancer that's not available in the United States. >> Wow. >> There's a special it's a very cutting edge. There's actually a new publication that came out in nature. It's a very big uh journal um about eight weeks ago was published for the first time. But we've been involved with this vaccine for three years now. We've been following very closely. I've visited the place in Germany multiple times. >> Showing results, >> excellent results. We have a few patient that had no chances and are cured. So respect for the right. Wow. No way. Yeah. >> You have a minute? How many active cases do you have right now? >> I think it's in the neighborhood of 85. People could have it very hard. Maybe gave me some perspective on, you know, things that I thought are a big deal on my life that I see people have it harder. Um, I also learned that people are very resilient and um, uh, sometimes patients are can be surprisingly strong or the family can be surprisingly strong. Not only is their understanding of cancer therapy exceptional, but they are tireless. Any time of day, any time of night, they'll find me in the office. They'll call my cell phone, and they will continue to navigate and provide for the child or the adult that they're trying to navigate this complex arena for in a very seamless way. And I and I and I can't thank them enough for what they've done for this community. The biggest cancer hospital in New York is called Memorial Sloanketering, MSK, and they have uh various satellite locations and they have one right on the border of Rockland County and New Jersey. It's in New Jersey and Montville, New Jersey. So we have a very close working relationship with many of the doctors there and and uh actually when they opened up the center we've been help we've been very directly communicating with them about different things how they should implement so it should serve the community here. So we're meeting here um with a doctor to discuss a couple of cases what's your name? So when he was diagnosed in October, I spoke to the mother before >> October of last year. >> Yeah. >> Okay. Octo diagnosed with what? And it was the first time you heard such a thing. What did you think? >> I was scared, nervous about what was going to be in the next months. This is the result. This is crazy. Summer, >> you heard of our mitzvah? >> Yeah. >> Where was it? >> Um, Garden of Paradise. >> Do you have pictures? >> Yeah. >> I need to see pictures. I just want to thank them for being with me and my parents through my journey. >> Wow. You're >> wow. >> You invite me to your and to your grandchildren's. >> Amen. Amen. Amen. Thank you so much. >> Thanks. >> Wow. This was exciting. >> This is unbelievable story. Bashem and read many more. You had you had such stories. You had stories. >> We had such stories. How does it feel? >> It's a relief for staff to have such good stories come out. Okay. uh RCS organization the front end mention of an organization apart from them is well in the executive board early detection opportunity pay attention to family history. Well, there's a chance from the side effects from the medications treatment because all the measurements getting records a patient came around, you need to start getting all the records from all the doctors that they went in order to be able to present it for the doctor to have a full picture what's going on. >> Wow. >> All of these things the care management does. >> Okay. >> Now, we'll switch over a little bit to the program. There's the financial like I call the financial m the financial program they help financial help this include insurance navigation basically. They just want to know insurance as there's the right insurance and the right policy in insurance brokers. We just have experience in the policies that we review to see what the what covers and what doesn't cover. In addition from that, as D mentioned was I hub insurance and the policy gets that the policy the insurance company denies some testing. So we have an advocacy department that's going to >> reach out to the insurance company. We actually saved $16 million last year advocacy fin department from the advocacy department. >> Wow. >> Yes. data is legit that we have backup. How many actual reports that we see exactly all these numbers in addition hospitals hospitals financial assistance programs patients $1.6 million last year. Wow. >> Then we'll go also to the discussion insurance premiums that we pay. insurance and they pay for it now in extra expenses when a patient goes through this unfortunate situation health insurance premiums >> New York, Florida, New Jersey, Orlando, Ohio, Australia six-year-olds do the six-year-olds I would say. Yes. Unfortunately patience patience. Patience prolonging their life and having a quality of life and be able to is a accomplishment. So entrance garage in in the building and do is do a private entrance >> from the garage. from the garage with Kim. It's a private hallway and family relaxing though. >> Extremely relaxing. >> Specially for doctors and special people who's coming around visiting the office. >> You are in >> amazing hands. So one doctor was it other medical coordinator was thought actively mentioned the following other research visits uninterrupted case option. >> Yeah. Yeah. This is it is the is to manage to get involved in the organization from the medical department. The story is wow meeting. Yeah, sure. call. Miss Call from RCS. lips. Happy August 10 do study phase one study early director of operations for the patient department. as I'm out to the medical department and the financial department and the care management department is Brooklyn and Monro and Monty Lakewood of the Zoom pediatric brain tumor. This is unfortunately complicated spinal tumor. That white in the middle is cancer in a diagnosical tumor most aggressive brain tumors actually special testing. >> Okay. Advanced testing blood test certain cancer types of kits for different situations situations cancer patient stuck with infection, nutrition issues, um, wound issues or under the GI issues treatment but the medical coordinators they get bottleneck with these issues complication chart. >> Yeah. >> So deep sign in the chart is best. >> Yeah, definitely. No problem. Okay. >> Yeah. Labor Day. September 16 operation. The link is up. The link is bothe you for a second. >> Yes. >> Hello. Meetings. I'm so sorry. So what's the mission of RCCS? >> If somebody gets diagnosed, the idea is that we should be able to hold their hands till they see the adult. Each patient comes with a family, siblings, kids all around it. 1% chance. What does it mean that you can save that patient? This is what we're looking for. But 1% is a big number. >> Wow. >> 20,000 happy families. >> Yeah. Yeah. Families live $135 million raised, >> $800 million insurance. This is numbers from three years ago. treatments of Palm Springs. foreign patient machine. for his. So is a bunch cubicles 60 cubicles mentioned for the medical department is fundraising. Yeah, this is actually the main entrance. So the mentions came from the gas. Yeah. Do a meeting. This is the budget committee. for the organization for marketing or the fundraising purposes with the income. Approvals. The donor hookups in deming a lot. This the patient checks. >> Medical checks. Sign all the checks. sign directly to the patient or to the center to the company to the insurance company the billy that's the final amount just to support the signature of the chart. So you know I spent a lot of my career working on angioenesis and we did not have an androgenic inhibitor. It's called basusimma elastic >> and the end result the end result was >> edema but didn't really work. >> You got it. Why is it so important to have an advocate like RCCS? >> Patient comes to the hospital, God forbid, they diagnosed with a brain tumor. How many of the patient have a physician in the family? Not only that, even if they have a physician in the family, is the guy a neuro guy? Does he know the difference between the default grading? what you are doing is essential because you are really really helping to eventually get the best treatment. You help the patient and and you know we didn't talk about kids but can you imagine a father and a mother dealing with a child with a brain tumor? >> It's the worst thing ever. >> You know the worst thing ever. I don't know if EOB would have dealt with it. The respect with the medical account for RCCS is we're going to meet now with the director of the gastrointestinal cancer program. >> Dr. Paul Oberstein, top oncologist and Z forward thinking researcher but also >> wow the cameras everyone >> thank you for coming for >> coming here. Thanks for joining me. Yeah, >> because the ament blocks met an EGFR. So anytime where where you would use an EGFR like satuximab or panitumab unresectable metastatic liver mostly got this got four or five cycles very good response went to surgery I have a patient now a year later and maybe they'll have to stay over by someone for a few hours until they can get to see her and somebody's going to send them food and of course everything but at the end of the day people's lives are put on a hold situation again good outcomes excellent outcomes >> the field this is going to be a challenge and so it's a heavy heavy place that we do have not just a sizable nice amount of staff but also uh the right people. Uh you have to understand every case needs so much point of views in order to get to the biggest chance for success. On one hand you need the research people. So these are the people with the geniuses who are attending conferences meeting with these doctors. These doctors either come into our office or we would go down to them for meetings. >> So this is very interesting that I feel like this um group organization comes out out with breakthrough ideas for the entire industry. I saw surprisingly that there's much more success stories than not. >> Absolutely. Bashm, I can tell you we just had you're talking about the patient that was literally on the system of the hospital. He was uh considered someone who was not treatable, who was going to die. So our team got onto it, one of our researchers, one of the guys that you met in the Mony office and he knew that there's a new clinical trial. was a lot of hard work from the research side, the logistics from the care management people to get the patient actually transferred over to and we got it done. The patient walked out on on his both two feets and you're talking about a dying patient. >> If we were doing justice to this whole episode, we would have to call it what a breakthrough. >> It wouldn't be what just what a day. It's what a breakthrough because you guys are bringing a breakthrough not only to Kaliso to the industry of the amina patient. needed that needs help that has uh from a suspicion to being very sick. We won't shy away from getting involved at any stage and Basham we see with tremendous results. >> Wow. What a breakthrough. >> What a breakthrough.